He was given just a fortnight to live when he was a toddler – but brave Kasabian Newton-Smith is still beating the odds at seven.
The brave youngster was told in June his cancer has returned once again – but responded by starting a massive fundraising campaign to build a new clinic at Sheffield Children’s Hospital.
The selfless youngster even tried to give his wish from the Make-A-Wish Foundation away to another youngster who he thought deserved it.
Mum Kay said it has been a difficult journey for the family over the past few years as the bad news kept coming.
She said: “It is a nightmare. It is a horror story that you wouldn’t think is real.
“But he is seven and he is still going. He has never said ‘it is not fair, why do I have to be poorly?’”
Kay said problems first started in 2010, when Kasabian looked like he had a stroke.
He was taken to hospital and was initially wrongly diagnosed with Bell’s Palsy. Weeks later, the symptoms remained and he could not sit, stand or walk.
Kay said doctors eventually found he had a ‘brain tumour the size of a man’s fist’.
She said: “They tried to tell us his chances were very low. They said you have a maximum of two weeks with him and they even said we could take him home and let nature take its course.”
But mum Kay and dad Simon pushed for an operation, which successfully managed to remove 95 per cent of the tumour.
She said: “We thought that was it and it was done with – they had taken this bad thing out and that’s it.”
But the family was soon called back in to be given the terrible news that the tumour was connected to a form of bone cancer Kasabian was suffering from.
The condition, Ewing’s sarcoma, was so rare it had never been treated in this country before and Kasabian went to America for three months for treatment.
Around Christmas 2013 it was discovered his cancer had come back – this time in his neck.
After undergoing treatment for that, in June a further two more tumours were found in his spinal cord. He is now undergoing more radiation therapy and the family are now hoping for a ‘miracle cure’ after being told by doctors it is likely his cancer will keep returning.
Kay said she hopes Kasabian – who won The Star’s Superkids Bravery award in 2012 – can keep proving the medical predictions wrong.
She said: “We are hoping he beats the odds and proves them wrong again as he has done for the past five years. We are hoping for a miracle cure.
“He doesn’t give up.”